History of KLS Foundation

The website was first developed in 1998 by Cindy and Dick Maier and their son, Stephen, who has KLS. It began as a way for the family to find just one other person with KLS and evolved into a way to support families and individuals with KLS when they discovered hundreds of other people affected by KLS.

In 1999, they formed the Kleine-Levin Syndrome Foundation, Inc., a non-profit organization, to help others with KLS and eventually determine the cause and cure for KLS.