Sorry to hear about your granddaughter. I had KLS episodes from the time I was 13 and the last one was 6 years ago when I was 27. My episodes were ~2weeks long and I had on average 2 per year during that period - so not as many as some others. I was able to graduate both high school and college in the US - I was very up front with teachers and professors and utilized some of the services offered by the Univerity’s disablilities programs - such as having people tape lectures for me and allow me time to make up work when I was well. My episodes decreased after college - I only had 3 from 22-27 years old and was able to work this out with my firm - went on “long term disability” during the episodes so the govt paid some of my salary and the firm picked up the rest. It is certainly not easy (missing big events and having to pick up the pieces after being out each time) but depending on the frequency and length of the episodes you can work around it.
Please feel free to reach out to me or other members - you can click on their user name and then select to email them - this is better than posting phone numbers or emails in posts which could be picked up by spammers. The emails sent through the user names are secured.
