My name is Sharon and I live in Sacramento, California. After seeing an episode of “Mystery Diagnosis”, and looking up the disorder on the internet, I realized that I definitely have KLS. After years of confusing intreractions with the mental health community (I have been diagnosed with all of the major mental disorders), I realize that KLS accounts for all of the symptoms. I am completely thankful to finally find an answer. It also explains why most of the medications I have been given haven’t particularly worked. My latest psychiatrist is a Kaiser doctor, whose assistant responded to my inquiries with “I’ve never heard of it.” That was several days ago and I haven’t heard anything at all. I need to learn how to talk to the medical community. The large symptom of sleeping has been dismissed as atypical depression.
I am having trouble with flushing and chills, does anyone else have this symptom? Is there anything that I can do to help regulate my body’s temperature?
Also, one of the members on her blog, mentioned “the prediction thing” as an unusual symptom. I also experience this symptom. For me, the prediction thing occurs often and is part of a confusing and larger experience. Since reporting this experience to dr.s has ended with my being accused of “magical thinking”, I am careful not to discuss this. Otherwise, my symptoms include long periods of sleep, confusion, compulsive eating, unexplainable sexual behavior (earlier in my life) and so on.
After being symptom free (and medication and dr. free) for approximately 11 years, I experienced a deep reoccurrence. Although I am no longer in the “depths”, I still have light episodes. It is amazing to read about other persons experiencing the kinds of things I have experienced. At one point, I told a therapist that I could not touch my things (meaning possessions, etc.) and being given the blankest look. I also reported feeling as though I was invisible...which of course meant more awful medication. I finally decided to quit taking all of unhelpful medications and am currently taking only 100 mg. of Zoloft. I tried to go off of it, but I felt terrible with pounding in my ears, so I continue to take it. Ritalin, adderal and dexedrine helped with the sleepiness, but not the compulsive eating which is a miserable symptom.
