Hi my name is Rebecca, my son CG has been diagnosed with KLS, (I actually diagnosed him after watching a episode of Montel) Then I took him to his nephrologist and he concured that CG does have KLS. CG is currently In a episode and they have him hooked to a EEG, it took ALL day to get him hooked up and he still isn’t fully hooked, they were unable to get his facial leads on, he was just to irate!! I would really like to talk to another parent that has been through this. I promise to fill you in more about his episodes, but I am going to go to bed I have had a very rough 2 weeks and need to get some sleep. God Bless you all Thanks for any help you can send my way.

GOD BLESS----Rebecca

Hi Rebecca,
My name is Diane. My daughter has KLS. I’m so sorry for what you have been going through. My daughter has had KLS for about six years. It is such a difficult illness to understand. I have been through a lot with her and I’d be happy to offer you support where I can. Feel free to contact me if you’d like to talk.
Best,
Diane

Hi Dianne. CG has also had this for 6 years, he so far has only had major spells every 3 years, but those put him in the hospital. Where are you located? I am in Ohio.